Tag Archives: Focus on Technology

The Five Year Diaversary

This week my 5-year-old daughter will be celebrating her 5th-year diaversary (the day will also mark 9 child-years of Type 1 diabetes in our family).

“Unlimited possibility” is her future, according to Sebastien Sasseville. In his presentation at the Children With Diabetes Focus on Technology conference in Crystal City, Virginia on February 3, 2013, he said people set the bar for themselves and “people need to challenge their perceptions” of what they are able to do.

Seb, who also has a younger brother with Type 1 diabetes, has climbed Mount Everest (carrying his insulin in a thermos), has raced through the Sahara Desert ‘for fun’ to complete the Sahara Race (155 miles in 7 days at 120 degrees) with his test strips and other supplies on his back, and has run 5 ironman triathlons.

I can only imagine how Seb celebrates his diaversary. I don’t think he celebrates with cake. I think he climbs Mt. Kilimanjaro backwards or something. I am open to creative ways to celebrate five years of hard work (nine child-years). Any suggestions will be appreciated.

Seb tweets at @sebinspires, and he is a machine for inspiration, too. Here are some of his mantras:

Persistence is required: it’s not the size of our actions but the frequency and quality of our actions.

Educate, prepare, set goals, experiment.

What is the lesson that diabetes is supposed to teach you?

Our individual weaknesses transform to collective strength.

 

 

Tweets from the Children With Diabetes Focus on Technology Conference

A summary of my tweets from the Children With Diabetes Focus on Technology Conference in Crystal City, Virginia February 1-3, 2013 touches on the highlights from the conference. More tweets can be found on twitter under the hashtag: #cwdtech.

From Juicy Mama ‏@JuicyMama2go:

Learning lots at the children with diabetes focus on technology conference in DC

Jeff Hitchcock…Symlin and Victoza have been used in teens and can help with weight loss

Jeff Hitchcock: two take home messages for teens 1. test BS more often and 2. pre-bolus for meals

Listening to Dr. Moritsugu speak on the zen of health literacy

Dr. Moritsugu says being a parent is the most difficult job in the world

Can Type 1 diabetes be prevented? TrialNethttp://www.diabetestrialnet.org/

JDRF Research Summit March 9th, 2013: http://www.jdrfsummit.org/

This t:slim insulin pump is so small it actually looks cute

It’s weird to get excited over an infusion set but I can’t wait to try the Orbit…Rotating head, breathable & heat sensitive tape

Dr. Damiano: Pathways to the Artificial Pancreas… 2013 camp study planned

Dr. Damiano holding up the Artificial Pancreas Dexcom-iphone device.

Commercial launch of artificial pancreas goal is first half of 2017- Ed Damiano

Tandem working on dual chamber pump for insulin and glucagon – Damiano

Keeping kids with diabetes safe at school by Crystal Jackson:

“We want our kids to have equal opportunity at school, like their friends,” Crystal Jackson

Crystal Jackson: 504 plans apply to religious and private schools that receive federal funding too and many do

Safe at school: regardless of state and local laws, federal law requirements must be met

27 states have passed school diabetes care legislation – Crystal Jackson

Virginia law: school nurse to student ratio: 1 to 837 (ranks 24th) – C Jackson

Making sense of sensor data by Gary Scheiner

It’s not how low you go, it’s how long you stay low- Gary Scheiner

It’s where you’re headed, not just where you are- Gary Scheiner

Gary Scheiner: consolidate the snacks

Gary Scheiner: the best way to figure the duration of insulin is to give a correction dose & see when BS stops dropping

Store sensors in fridge and they can work past the expiration date – Gary Scheiner

Sensors are like fine wine. They get better with age. – Gary Scheiner

“Greatness always comes from adversity,” Sebastien Sasseville

“You have to challenge your perceptions,” @sebinspires

Sebastian has a brother with Type 1 too. He tries every day to win against his diabetes. @sebinspires

I could not think of another disease you must do together. It’s a team effort. @sebinspires

“When you build a team you are always stronger,” @sebinspires

When you climb Mt. Everest you go up and down to get to the top, you just don’t go up.” @sebinspires